What Support is Available for Dementia Carers?

Caring for someone with dementia can bring a range of emotional, practical and financial challenges, particularly as the condition progresses. However, there is support available to help carers manage these demands, including specialist dementia advice, emotional support, respite services and local community resources.

Where to find support

Our Admiral Nurse provides expert guidance tailored to an individual’s situation helping them understand dementia, plan for the future and maintain their own wellbeing alongside their caring responsibilities.

Carers can access support through local councils, carers’ assessments, respite care, support groups and organisations such as Dementia UK or the Alzheimer’s Society. For many families, the first point of contact is their GP, who can offer advice and direct people towards appropriate services and support.

Social services can also provide practical support for people living with dementia and for those caring for them. This may include arranging visits from a home carer, providing access to day centres, offering respite care, helping with home adaptations or arranging services such as meals on wheels.

Requesting a carer’s assessment

If you care for someone with dementia, you are entitled to request a carer’s assessment from your local council. This looks at your own needs and identifies what support or services may help you continue in your caring role.

A needs assessment may also be arranged for the person living with dementia. This considers the support they require in daily life, which may include:

  • home equipment such as walking frames or fall alarms
  • home adaptations such as a walk in shower
  • support from a paid home carer
  • access to day centres or community activities
  • respite care
  • help with meals or daily living tasks
  • moving to a care home if needed

You can apply for a needs assessment through local social services or through the government website.

Some people living with dementia may also be eligible for a Blue Badge, which allows parking closer to destinations. In England, this can be applied for online or by phone.

Emergency Support and Safety Planning

If you need urgent medical advice when your GP surgery is closed, NHS 111 is available 24 hours a day by phone or online.

The Herbert Protocol is a national scheme designed to help locate a person with dementia if they go missing.

It encourages carers to prepare a document containing helpful information such as a physical description, health details and places that are meaningful to the person. Copies can be shared with family members, neighbours and the police if needed.

Could dementia care be right for me?

As dementia progresses, caring at home can become increasingly challenging. If your loved one’s needs are becoming difficult to manage safely, or your own wellbeing is being affected, it may be worth exploring dedicated dementia care.

A dedicated dementia care home can provide 24-hour support in a safe, structured environment, helping ensure appropriate care while also easing pressure on family carers. For many, this can be a supportive next step when additional help is needed.

Useful Links

A number of national charities offer specialist support, guidance and information.

Dementia UK
Dementia UK is the specialist dementia nursing charity. Its nurses, known as Admiral Nurses, support families affected by all forms of dementia.
dementiauk.org

Admiral Nurse Dementia Helpline
0800 888 6678
Monday to Friday 9am to 5pm
Weekends and bank holidays 9am to 5pm
Email: helpline@dementiauk.org

Age UK
Provides information and advice on financial matters, care services, legal issues and support groups.
Website: ageuk.org.uk
Helpline: 0800 678 1602

Befriending Networks
Connects people who may feel isolated with volunteer befrienders for companionship and support.
befriending.co.uk

The Bladder and Bowel Community
Offers support and information for people managing bladder or bowel conditions.
bladderandbowel.org

Care Rights UK
Provides advice and support for people using care services and their families.
carerightsuk.org

Carers Trust
Offers practical and emotional support to unpaid carers through a network of local partners.
carers.org

Carers UK
Provides advice and guidance on issues such as benefits, employment and carers’ rights.
carersuk.org

The Cinnamon Trust
Supports older people and those with health conditions to remain with their pets for as long as possible.
cinnamon.org.uk

Citizens Advice
Offers free advice on a wide range of topics including benefits, housing and legal matters.
citizensadvice.org.uk

DEEP: the UK network of dementia voices
A network that connects people living with dementia to share experiences and raise awareness.
dementiavoices.org.uk

Dementia Carers Count
Offers support, courses and advice to help carers build confidence and skills.
dementiacarers.org.uk

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Talk to us about dementia care

If you are considering dementia care now or planning ahead, our team can explain how life works at our dementia care homes and discuss your individual needs.

You are always welcome to call and talk things through.